I started having nosebleeds Saturday morning. The first few were quick and easy and spread apart. By late evening they were heavier and closer together. On Sunday I had about 10 nosebleeds by midnight and was literally bleeding out my eyeballs, so David took me to the ER. At one point there were three nurses helping because it was just too much blood. They eventually got it to stop after several hours and several things tried. I had a CT scan that turned out normal. I had an appointment with my ENT first thing this morning and he cauterized a burst blood vessel. I promptly passed out. He told me it was all (the burst blood vessel, the passing out) probably caused by high blood pressure and I need to lower my stress levels. He gave me side eye when I laughed and laughed.
All my people are home from their various places now. David and Nick have been to the Feast of Tabernacles at the Steamboat Springs site in Colorado and they had quite the adventure getting back home because they got caught in a blizzard without snow tires or chains. They ended up having to do a huge detour to get home. Greg was in Lake Texoma with his aunt, uncle, and girl cousins with a different FoT group than we went with a couple years ago, but they stayed on site at the same resort that our main festivities were at last time, so it was familiar for him. They all had fabulous times at the places they went and I’m sure soon I’ll see more photos of their trips.
They were gone for about 10 days, about 8 of which I was sick with a horrific sinus infection — like hallucinations, fever, two kinds of antibiotics sick. Poor Ree. He was stuck home with me, which meant that sometimes he had to make his own meals and once he seriously offered to walk to the grocery story (he doesn’t drive yet. We need to work on that.) In any case, we are glad other people are back now.
The problem with being sick when your mom has died is that you have no one to call when you just want to whine about it and have someone tell you that “you should check the color of your tongue and take mucinex, why do you hate mucinex? Oh hey, did I tell you about the new building over by campus? It’s awful. Everyone is going to hate it. But there’s another new restaurant on University that we should go to when you come down…”
My exciting Friday night: two new medicines to help with my RA/Fibro flare (a Medrol taper pack and Lyrica), store bought autumn squash soup (I wish I had the energy to make homemade), and a TV show that irritates the cats. It’s just me and the cats home tonight. Everyone else feels well enough to have exciting plans. Wahoo!
I had this Too Good To Be True nice kind of day where you kind of secretly wait for the awful thing to happen. Yeah. Prednisone wore off and I’ve got a sinus infection. I was finally going to get to chaperone the band. I was feeling so good. Now I feel like someone took a blowtorch to my sinus cavity.
Signs that you might need to go to bed early. I’m so tired right now that I just misread a sign as “The Devil’s Roomba.” Yesterday, similarly tired, I read a different sign as “Murders Ahead.” I also got mad at a light switch for not turning on the light that was already on.
So yesterday was a good day to stay at home. I felt like trash, my meds gave me terrible acid reflux, and not even 6 prednisone gave me any energy to do more than sit on the couch. It did not, however, let me nap, so the band’s delay in getting home (buses arrived in Tyler at 2:30am) was …interesting. Especially as the light over the front door stopped working and I ended up taking a living room lamp out into the porch area so we could see to get back into the house.
I did finally sleep and today has been a better day because I got acid reflux prevention meds, I heard from my traveling boys, and Ree is back home to clean up all the cat vomit (Cosmo has decided that eating the plastic sleeves of things in the trash in my bathroom is a good plan. I keep my doors closed, but he has managed to get in there several times now. I swear he can open doors.). See! Bright sides! 🙂
Day one on new meds: I’m having one of those days like those old V8 commercials where they were leaning sideways (for me it’s left side only). Feeling super weird.
Some people have asked about the fibromyalgia, since I don’t talk about it much. My version of fibro has been really quiet until recently. Now in addition to the muscle spasms, pain, and weakness, I am also having a lot of the cognitive issues (severe brain fog – I literally forgot I had a 3rd child the other day – inability to do simple math – not being able to figure out where I am in familiar places like my own kitchen, inability to comprehend speech, sensitivity to loud noise -which never has ever been an issue before, etc), plus dizziness & vertigo, trouble swallowing, and other digestive issues I don’t feel like discussing. It’s a LOT. Thanks for being concerned about me!
Here’s a link to a good fact sheet about the symptoms of this disease: https://www.verywellhealth.com/fibromyalgia-symptoms-716139
I saw my rheumatologist today and brought up all the things that my neurologist last month told me were probably RA or fibromyalgia related. The doctor checked my fibro points and they were all super painful, so I’m getting a new med to add to what I’m already taking. My RA is also still flaring, so I get steroids, too. As for that pesky list from the neurologist, the doctor told me that those things usually only pop up in people with super uncontrolled disease states and mine has been good for the last couple years. So we did some “deep blood work” that we don’t usually do to see if something is wrong or if something else is at play. Being me is fun. But I have a new theme song this week. Listen and enjoy!